Monday, November 06, 2023

a footnote in someone else's happiness

I shouldn’t have waited until Day 6 to say something to you, the two people I imagine might meander over here to read what I have to say from time to time. I owe you both an apology. 

That last post that was hanging around here since June 2020 for three-point-four years was "vagueBooking" at best. And the ensuing sustained silence may have insinuated that my brother was clawing his way through a serious medical swamp...from which he might not have emerged. 

He was. But he got out. 

I'm so sorry I didn't come back and tell you that he was ok. He is ok. 

That year—2020—was hell for a lot of people. And nobody who knew what was going on will ever be the same after having lived through it. Collective trauma and all that. 

For us, the stakes felt higher. Many people in my life took this approach: “Well we have to live our lives!” Or “sure but what’s the cost to our mental health?” It was especially surprising coming from the pastor who lived next door, but who knows what kind of stuff he was having to counsel people about.

Those are valid points! That said, all those folks had the luxury of assuming that Covid-19 would be a miserable experience, but they (and their loved ones) would likely come through it to the other side with their lives. Mental health is important, to be sure, but if your body doesn't make it, neither does your mind. 

We suspected that Covid would likely put my brother in the ground and didn’t want to take the chance, especially because my mom and I were his lifeline to the outside world. It felt as though every person I knew who was bitching about having to wear a mask didn’t actually give a shit about his life. Or what losing him might to do to mine, frankly. Eh, he has a pre-existing condition. What can you do? Those people are expendable, right? Certainly not worth being *uncomfortable* for more than a few months to try and protect. It's not like losing one of them could destroy a family or anything. And even if it would, that's somebody else's family and somebody else's problem. So all of us locked down harder than anyone else we knew.

Then we got smacked with something no one was ready for: That post I left you hanging on for three years? It had nothing to do with Covid. It was about a headache that turned out to be a brain bleed. 

The kid had to have a hole drilled into his skull so that the excess blood could be released and stop exerting pressure on his brain. Thank goodness it worked and he was ok.

We doubled down on our Covid-aversion measures. If we went anywhere at all it would be while re-breathing our own wet carbon dioxide, the mask digging into our cheeks and cutting into the backs of our ears. The alternative…the sheer idea of dropping the ball and letting something happen to him…just the possibility kept me up at night, even more so after this horrible virus sent my mother’s beloved sister--her person--to heaven far too early. And these kids? These amazing little imps were the only ones in their classes who stayed home then wore masks all day long for nearly THREE school years.   

Despite everything we did, in fall 2021 my brother stepped out to celebrate a close friend’s Very Important Day and BAM, it happened. He got Covid. And we had been right. It very nearly did kill him. 

I’m the one who had to call 911. To sit next to him for days in the overflowing ER when they couldn’t get a bed on a unit and bemoan the fact that the stubborn goat never signed a Power of Attorney so I couldn’t get him transferred to the hospital that actually knew five or three things about his complex medical history--and they were holding a bed for the guy. I had to relay all sorts of tenuous and terrifying information to my parents, going out of their minds at home; and to my husband, managing a fulltime job and two very small children (one of whom was still in diapers) at our house. Once my brother got a bed, my mother was at his side for the worst of it. And it was very bad. He was on the brink. The pandemic wasn’t anywhere near over for us. If I'm being very honest? It may never be over for us.

Somehow, he got through it. I’d be lying if I said he was ever going to be the same again (another myth about Covid—not everyone recovers 100%). I wish I could tell you some of the truly scary bits. But my brother doesn’t want me telling people his business. I’ve probably already said too much.

This is where I struggle: Yes. This happened to my brother, not me. His very supportive college roommates who live in different states, his revered colleagues and close high school buddies—who most decidedly are NOT receiving an average of 12 phone calls at any time of the day or night just to say whatcha doin' NOR are they dropping their spouses, children, work, obligations at a moment’s notice to sprint out the door because the call is coming from an emergency room—they are quick and loud to affirm: Yes! It’s HIS life. It’s HIS story! And if my brother doesn’t want anyone to know his business, then I need to respect that and keep my damn mouth shut.

I get it. I really do. He can't control anything about his health. So he keeps an iron fist around the information.

But…how am I supposed to continue being his emotional support animal on a need-to-know/need-to-tell basis? How am I supposed to jump off a conference call to answer the phone only to discover he’s bored or saw a funny meme or has a taste for Taco Bell or is craving Lemon Lime-flavored New York Seltzer brand soda we used to drink in the '90s that is no longer sold here or has a knot in his back or thinks he may be dying and doesn’t want to die or is tired of fighting and needs a pep talk…How am I supposed to manage that, while also trying to explain to everyone else in my life who has expectations of me that no, I'm not that lazy or scatterbrained, I'm just really tired and that pesky attention deficit disorder is probably to blame; no, melatonin does not work with my anxiety; I HAVE tried to meal plan--believe me--it fails when you can't follow through this evening, let alone know what might happen by the end of the week; I try to make sure the fridge is stocked and the undies are clean and the library books get returned and the kids' homework gets done and birthday party gifts are bought and the appointments are scheduled so at least my husband doesn't have to worry about those things, too...and I'm constantly failing...There's dishes in the sink and clutter piled on every flat surface in this house. How am I supposed to make anyone outside these walls understand when it's not my story to tell? This is not a week or a season. This is my actual life. And nobody gets it.

So I didn’t post at all. Because it isn't about me. It never has been.

What I can say is that I haven’t known any different since I was four years old. The guillotine that he could be snatched away has been over our heads since 1982, ready to drop with no notice. Every goodbye, every opportunity to give him something he wanted, every disagreement carried a silent “but what if this was the last…? Will you be able to live with yourself if THIS was the last…? It was hard for a kid to understand. I did grasp the severity of the situation, so I tried not to make a fuss. And especially now that I’m a parent myself, I don’t blame my folks for a single decision they made; they did and continue to do their very best, an amazing job considering what they have. Which is uncertainty and prayer.

I’m 45 years old. I have two exponentially rapidly growing small children who know that sometimes Mommy is gone for a long time without completely understanding why. This might go on for another decade and then I’ll have exponentially rapidly maturing teenagers who will leave this house and hopefully remember to call me on my birthday. Or it could all be over tomorrow. Then my exponentially rapidly growing kids might not look up from their devices long enough to see that I’m tangled up and lost in my guilt about what I could have done. They're accustomed to me going missing for stretches at a time. 

My friends understand that I sometimes can’t attend events because I need to be elsewhere. They agree, it isn't my story to tell. I really should be more respectful of my brother's privacy, for goodness' sakes, look at all he's going through. The ones close enough to see my actual life know that mentioning it to him will result in unfortunate repercussions for me. Those friends hear more of the story. And H. That man. He is the only one who understands what it feels like to try and, how does he put it? Sprint a marathon. And he's the one left holding the bag and keeping this chaotic ship afloat, solo, more times than is fair. Sure, he had an idea of what he was signing up for. By no means did that make it any easier.

Three years. I should have come back and told both of you dear readers that he was ok. Forgive me. Blame it on my ADD. For what it's worth, there were way too many details that needed to be redacted.


#NaBloPoMo

“Headfirst Slide Into Cooperstown on a Bad Bet” Fall Out Boy 

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