rip away the tears; drink away the happy years

My brother passed away today. 

As much as we have always been bracing for this, it took us by surprise in the way a sheet of ice on a sunny day can melt just enough to waft down from a high skyscraper window and slice a pedestrian in half. 

My mother was alone with him in a hotel room in Nashville, where he had come to have a consult about a heart and lung transplant. It was a couple of tests and 31 vials of blood. Not a procedure. Not a surgery. Just as it had been for the last few months, no matter the position he simply could not get comfortable in the hotel room. She’d stand next to his bed and rub his back till he was snoring on her shoulder, then lay him down and go to her bed to try and get some rest. But then he’d suddenly be sitting up, again saying he was uncomfortable. She repeated the process, but this time the small voice inside of her that has never guided her wrong suggested she lie down next to him. She stroked his hair and laid her hand on his chest. And then it stopped moving all together. He struck out his limbs as if he’d had a shock and wouldn’t respond. She had to pull him to the floor and start CPR.

My mother managed to maintain his weak carotid pulse until the front desk attendant ran in to help with compressions and the ambulance arrived. The EMT patted her on the back and said “you did a very good job.” They let her ride in the ambulance, but in the front, helplessly watching their attempts at resuscitation from the little window. She called me on speaker at 12:15am and I heard it all; including the call of time: 12:34 am. It felt like I was in a movie about a made-up character, not a person without whom I feel I have no identity. 

She said it was the most agonizing thing she’d ever done in all her 72 years. It’s remarkable—many mothers give birth to their children, “but how many can say they had the honor of giving their child his last breath, too?” 

All I could do was look up into the air and thank all the good things of the world that after all of the agony and the suffering, the loneliness of being misunderstood and underestimated, my brother passed on from this world connected to the person who loved him the most. He didn’t have to face the journey alone. 

We are not okay.

#NaBloPoMo

“What Would You Say?” Dave Matthews Band 

a footnote in someone else's happiness

I shouldn’t have waited until Day 6 to say something to you, the two people I imagine might meander over here to read what I have to say from time to time. I owe you both an apology. 

That last post that was hanging around here since June 2020 for three-point-four years was "vagueBooking" at best. And the ensuing sustained silence may have insinuated that my brother was clawing his way through a serious medical swamp...from which he might not have emerged. 

He was. But he got out. 

I'm so sorry I didn't come back and tell you that he was ok. He is ok. 

That year—2020—was hell for a lot of people. And nobody who knew what was going on will ever be the same after having lived through it. Collective trauma and all that. 

For us, the stakes felt higher. Many people in my life took this approach: “Well we have to live our lives!” Or “sure but what’s the cost to our mental health?” It was especially surprising coming from the pastor who lived next door, but who knows what kind of stuff he was having to counsel people about.

Those are valid points! That said, all those folks had the luxury of assuming that Covid-19 would be a miserable experience, but they (and their loved ones) would likely come through it to the other side with their lives. Mental health is important, to be sure, but if your body doesn't make it, neither does your mind. 

We suspected that Covid would likely put my brother in the ground and didn’t want to take the chance, especially because my mom and I were his lifeline to the outside world. It felt as though every person I knew who was bitching about having to wear a mask didn’t actually give a shit about his life. Or what losing him might to do to mine, frankly. Eh, he has a pre-existing condition. What can you do? Those people are expendable, right? Certainly not worth being *uncomfortable* for more than a few months to try and protect. It's not like losing one of them could destroy a family or anything. And even if it would, that's somebody else's family and somebody else's problem. So all of us locked down harder than anyone else we knew.

Then we got smacked with something no one was ready for: That post I left you hanging on for three years? It had nothing to do with Covid. It was about a headache that turned out to be a brain bleed. 

The kid had to have a hole drilled into his skull so that the excess blood could be released and stop exerting pressure on his brain. Thank goodness it worked and he was ok.

We doubled down on our Covid-aversion measures. If we went anywhere at all it would be while re-breathing our own wet carbon dioxide, the mask digging into our cheeks and cutting into the backs of our ears. The alternative…the sheer idea of dropping the ball and letting something happen to him…just the possibility kept me up at night, even more so after this horrible virus sent my mother’s beloved sister--her person--to heaven far too early. And these kids? These amazing little imps were the only ones in their classes who stayed home then wore masks all day long for nearly THREE school years.   

Despite everything we did, in fall 2021 my brother stepped out to celebrate a close friend’s Very Important Day and BAM, it happened. He got Covid. And we had been right. It very nearly did kill him. 

I’m the one who had to call 911. To sit next to him for days in the overflowing ER when they couldn’t get a bed on a unit and bemoan the fact that the stubborn goat never signed a Power of Attorney so I couldn’t get him transferred to the hospital that actually knew five or three things about his complex medical history--and they were holding a bed for the guy. I had to relay all sorts of tenuous and terrifying information to my parents, going out of their minds at home; and to my husband, managing a fulltime job and two very small children (one of whom was still in diapers) at our house. Once my brother got a bed, my mother was at his side for the worst of it. And it was very bad. He was on the brink. The pandemic wasn’t anywhere near over for us. If I'm being very honest? It may never be over for us.

Somehow, he got through it. I’d be lying if I said he was ever going to be the same again (another myth about Covid—not everyone recovers 100%). I wish I could tell you some of the truly scary bits. But my brother doesn’t want me telling people his business. I’ve probably already said too much.

This is where I struggle: Yes. This happened to my brother, not me. His very supportive college roommates who live in different states, his revered colleagues and close high school buddies—who most decidedly are NOT receiving an average of 12 phone calls at any time of the day or night just to say whatcha doin' NOR are they dropping their spouses, children, work, obligations at a moment’s notice to sprint out the door because the call is coming from an emergency room—they are quick and loud to affirm: Yes! It’s HIS life. It’s HIS story! And if my brother doesn’t want anyone to know his business, then I need to respect that and keep my damn mouth shut.

I get it. I really do. He can't control anything about his health. So he keeps an iron fist around the information.

But…how am I supposed to continue being his emotional support animal on a need-to-know/need-to-tell basis? How am I supposed to jump off a conference call to answer the phone only to discover he’s bored or saw a funny meme or has a taste for Taco Bell or is craving Lemon Lime-flavored New York Seltzer brand soda we used to drink in the '90s that is no longer sold here or has a knot in his back or thinks he may be dying and doesn’t want to die or is tired of fighting and needs a pep talk…How am I supposed to manage that, while also trying to explain to everyone else in my life who has expectations of me that no, I'm not that lazy or scatterbrained, I'm just really tired and that pesky attention deficit disorder is probably to blame; no, melatonin does not work with my anxiety; I HAVE tried to meal plan--believe me--it fails when you can't follow through this evening, let alone know what might happen by the end of the week; I try to make sure the fridge is stocked and the undies are clean and the library books get returned and the kids' homework gets done and birthday party gifts are bought and the appointments are scheduled so at least my husband doesn't have to worry about those things, too...and I'm constantly failing...There's dishes in the sink and clutter piled on every flat surface in this house. How am I supposed to make anyone outside these walls understand when it's not my story to tell? This is not a week or a season. This is my actual life. And nobody gets it.

So I didn’t post at all. Because it isn't about me. It never has been.

What I can say is that I haven’t known any different since I was four years old. The guillotine that he could be snatched away has been over our heads since 1982, ready to drop with no notice. Every goodbye, every opportunity to give him something he wanted, every disagreement carried a silent “but what if this was the last…? Will you be able to live with yourself if THIS was the last…? It was hard for a kid to understand. I did grasp the severity of the situation, so I tried not to make a fuss. And especially now that I’m a parent myself, I don’t blame my folks for a single decision they made; they did and continue to do their very best, an amazing job considering what they have. Which is uncertainty and prayer.

I’m 45 years old. I have two exponentially rapidly growing small children who know that sometimes Mommy is gone for a long time without completely understanding why. This might go on for another decade and then I’ll have exponentially rapidly maturing teenagers who will leave this house and hopefully remember to call me on my birthday. Or it could all be over tomorrow. Then my exponentially rapidly growing kids might not look up from their devices long enough to see that I’m tangled up and lost in my guilt about what I could have done. They're accustomed to me going missing for stretches at a time. 

My friends understand that I sometimes can’t attend events because I need to be elsewhere. They agree, it isn't my story to tell. I really should be more respectful of my brother's privacy, for goodness' sakes, look at all he's going through. The ones close enough to see my actual life know that mentioning it to him will result in unfortunate repercussions for me. Those friends hear more of the story. And H. That man. He is the only one who understands what it feels like to try and, how does he put it? Sprint a marathon. And he's the one left holding the bag and keeping this chaotic ship afloat, solo, more times than is fair. Sure, he had an idea of what he was signing up for. By no means did that make it any easier.

Three years. I should have come back and told both of you dear readers that he was ok. Forgive me. Blame it on my ADD. For what it's worth, there were way too many details that needed to be redacted.

#NaBloPoMo

“Headfirst Slide Into Cooperstown on a Bad Bet” Fall Out Boy 

come down from your fences, open the gate

We moved to a new house two years ago, and location was the prime factor. Well, in the spring of 2021 get getting ANY home was the real prime factor, but we didn’t even look at anything that didn’t fall within the boundaries of the elementary school whose field backs up to my parents’s backyard fence. That way, I reasoned, when my folks retire, the children can walk to their house after school and have a wonderful time until we pick them up after work. 

But here we are, with a third-grader and first-grader…and these people are still working. So we pick them up from the bus. It’s fine, because we work from home and the bus stop is right on our corner. So much for plans. 

Another thing about this house? In order to jam as many single-family homes into what used to be a farm, they decided no one was going to get a yard—just communal green spaces over which the crotchety broad who lives next door will threaten to call the cops because 5yearolds have dared to laugh and have fun within 500 feet of her window. But that’s a story for another day. 

It sure does make me miss Sid and Bertha (RIP), our neighbors who put up this passive-aggressive fence because we weren’t timely enough with our leaf raking. 

#NaBloPoMo

“Desperado” The Eagles

it's a beautiful, messy, unfair world, after all

Tonight I put two little boys to bed.

I rubbed their backs, I stroked their hair, I watched their eyes flutter open, I reassured them I was not leaving when they complained. And when they were all the way out, I backed away slowly and closed the door behind me.

One of those boys is my two-year-old son, whom I carried for nine months and watched being lifted out of my own belly via the reflection in the chrome of the overhead lights in the operating room. The other is my 37-year-old brother, whom I prayed so hard for every single night in the months before I turned four because I was lonely and wanted a baby to play with but not one who would want to share my dolls.

***

So much has happened in two weeks. Two weeks? Has it been three? Has it been 47? What is time anyway? I feel like I've lived two years of events in the last three months. Normally I'd spend a lot of time trying to find words to describe how I feel about Covid19 coronavirus (hella terrifying), quarantine (confusion and struggle), #BLM (it's about damn time), murder hornets (only THIS much less terrifying than Covid), looting (opportunists coopting a movement) and 45's government (I'll never find words for that one). There aren't enough stolen wee hours of the morning for me to write coherently about what has happened, so I'm just going to start at the beginningish. It's almost 3am. Be kind.

***

The Thursday before Memorial Day, May 21, was already a bad day. It was the anniversary of the birth of the first baby who didn't live. She would have been seven this year. I had already been feeling emotional and lashing out at people for a few days because the 21st is just the date on the birth and death certificate; my water broke at the office on the 19th and I agonized over hearing her heartbeat every eight hours for two ungodly days of torture before actually delivering her into a world where her little lungs had no chance of providing a breath. And the ordeal lasted for months afterward. It's like my soul activates some sort of emotional muscle memory of that experience around this time, and this year was exacerbated by the anxiety and hopelessness of the pandemic. My mother brought over a card and a gorgeous cream-colored orchid plant. My brother showed me that he had a reminder on his phone of her birth date and mentioned he had a headache.

My brother wanted us to come over on Saturday and grill out with him. I was not loving the idea, what with the death sentence that coronavirus would be for him and lifelong agony it would be for me if we were the reason he'd gotten it. It rained. My brother somehow manages to get his way, so he fired up the grill on Sunday and we made our way over there. He was on the deck with my mom, all masked up and distanced. My dad wasn't feeling social so he was kind of off on his own in the corner. H, the kids and I were all down on the lawn, running around--them playing with a slew of new toys their Nani couldn't help but buy and us in chase, trying to get them to take some ever-loving bites of their hot dogs. Ro actually loved the steak her uncle prepared, so she ate the heartiest meal she'd had in a week. The only time my brother wasn't grumpy was when he was shooting water at the children and making them scream in fake terror and run for cover. I kept telling H that it seemed like my brother was mad at me. Then I saw his hands trembling when he was putting the corn on the cob onto his fancy grill. That was odd. Apparently that headache--a dull pain that he'd never really had before--hadn't really subsided and he was taking Aleve every day to unsuccessfully make it go away.

The next day was the actual Memorial Day. It was the day we all, including my folks and brother, were supposed to have been getting on a plane to Orlando to visit what we'd been telling the children was "The Beach" (Hint: It's Disney World). My brother had planned every single teeny detail as only a Manager of Project Managers like himself is capable of doing. I was mostly interested in finding out what is so special about the Dole Whip and whether we'd survive the rigorous timetable. Sticking to a schedule with two children under six is a nightmare and I'm not going to lie: the 8:30am breakfast with Belle was a joke--we can't even get them out of bed by 8:30am and Orlando is an hour ahead! Ro was going to have the first haircut of her life there. You read that correctly; her hair comes down past her little behind, just like Rapunzel. Not a single one of the seven of us has ever been to this magical place where everyone is supposedly always happy. But it's closed, along with nearly every other place there is these days.

My brother decided to see his primary care physician in a video visit on Tuesday. He kept calling while I was on conference calls. During the quarantine, this kid has taken to calling me on average of six times a day. I get it: He is lonely and bored and a little bit miserable. I can't always answer, but have always had this nagging feeling when I send him to voicemail that it's going to be a bad call that I've ignored. Most of the time he just wants to shoot the shit between his own meetings or when he's tired of tv or when he wants to see the children. But this time the follow up text was "I'm going to the Emergency Room."

What he thought was a tension headache was actually a brain bleed.

After that initial cat scan, they admitted him directly into the ICU. No visitors. No information. My parents were losing it, I was freaking out and he was in there, all alone.

***

One thing I may have not made clear about my brother is that he is a charmer. I cannot tell you how many people met him once and have remembered him forever. He has been working this voodoo on our parents and me since he entered this world, and somehow generally gets his way. I'd say a lot of that is because it really doesn't hurt us to make whatever he wants happen, and the precariousness of his health condition is kind of always hanging around like a lingering cough: This could be the last…do you really want that to be the last…? So while he was dealt a really shitty hand at birth, we have tried to make the rest of the stuff that is in our control a little less shitty. And perhaps he might take some of that for granted, because he doesn't know any different. That said, he works very hard and has made a name for himself. He's actually a bunch of people's boss. It's strange, because to me he's still a three-year-old running around in Smurf undies.

He knows someone who knows someone who knows the CMO of the hospital where he is admitted. They gave him permission to have ONE person be able to come and visit. And two days into his stay, the CMO came to his room to greet him and tell him so, personally. That very special allowed visitor is me. I feel incredibly guilty, because no other patients get visitors, but not guilty enough to stay home and leave him to suffer alone.

***

The ICU room is new. There's a giant flexible, shiny silver tubing coming in then out the back that is LOUD. AS. HELL. It creates negative pressure to continually suck out all the air in the room, thereby also sucking out any airborne germs. This is handy in the time of Covid19, and I'm sure by design. But the sound measures 65 decibels. And there is no break. You can't even hear yourself think in there, let alone dream about listening to a podcast.

The first couple days my brother was in ICU. Then they moved him to a sweet new room with lovely windowseat with a view of the nearly empty parking lot and two (!) televisions in it. During those idyllic days, I'd bring him a different meal each evening and rub his head while he watched reruns of "Chicago P.D." or "30 for 30" on ESPN (that Lance Armstrong was something). He could walk and talk and generally function fine, but the headache wasn't going away. They kept doing CT scans to check on the bleed. I managed to be there one day when the neurosurgeon was there, and they explained that in a normal patient, they'd take them to the operating room and "evacuate" the blood and fluids immediately to relieve pressure on the brain, but because my brother has a whole lot of extra stuff going on already, that would be risky. Mr. I Do What I Want had his three-chambered heart set on surgery.

Things have not been easy for this guy, as I have described in many a post here. But he has always been battling through it and coming out on the other side. This time is different. We are hearing a defeatist tone in his voice and exasperation and exhaustion like we'd never heard before. His best friend is expecting a baby and didn't reach out as much during this quarantine, which really hurt. I try my best to be there for him, but children need to be bathed, work hours need to be completed to pay the mortgage and I do need to sleep once in awhile. That unavailability hurts, too. Both of us. He really hasn't even gotten over breaking up with the longtime girlfriend, m, and kicks himself every day for having left her seven years ago. I don't feel right commenting on that relationship, but something needs to happen to give him the closure he needs because it seems like he just can't give anyone else a chance. He kept saying, "I'm tired. I am so tired of fighting. What is the point?" I would gently start listing the names of people who were reaching out with concern, love prayers and support. I don't think that did anything but annoy him, but he put up with it.

I had really been hoping the inflammation and old blood would magically go away without surgery (I read it can be reabsorbed by the body, but that wasn't going to happen in less than a week). They were set to operate on the morning of June 2, this past Tuesday. The delay was to accomodate several days of administering platelets and medication to encourage his blood to coagulate. Those would combat decades of blood thinner use he needed to keep his heart working without blood clots.

In those days before the procedure, he called EVERYBODY. Longtime buddies, out-of-touch friends and all his exes. Even m. He shared seven years of pent-up feelings with her and she was rightfully taken caught off guard. They are not getting back together. I don't think he got the closure he wanted. Whether he got the closure he needs is yet to be seen. Either way, she's been texting me for updates every day, along with his legion of fans.

The night before the surgery, several of his coworkers, his boss, my folks, my godparents and friends met up in the parking lot of the hospitals with signs and a Zoom meeting (where more work people joined) in a little rally. It was one of the sweetest things I have ever seen. My dad, who doesn't have the patience to sit through a feature-length film, drew a person holding a giant heart that said "You are special" and underneath was "Love Mom and Dad" and colored it all in--with thin-tipped markers. That must've taken forever. My mom made one with sports on it and something like "Get better very soon." We made a giant sign of taped-together easel paper that says "We [heart] you" in giant letters. Ro is obsessed with half purple/half pink hearts and is very proud of having mastered the shape. His nurse has taped those signs to his walls.

On the day of surgery, I was allowed to be there for the prep but told in no uncertain terms to GTFO as soon as he left for the operating room. He was irritated that he wouldn't be put all the way under but given "Twilight" sedation for the procedure. He was fiercely advocating for himself, and it made me very proud. They didn't know if he could survive general anesthesia. Which was ok, because apparently with brain stuff, most of the time the patient is kind of awake. His anesthesiologist turned out to have been in the same high-school graduating class, and they were catching up on classmates while she started his arterial monitoring line. Then they made me pack a bag with anything he might need for several days, take the rest of his stuff, and they wheeled him away. Six hours later, after the procedure, getting off the ventilator, the recovery room and the initial CT scan, I was let back in to see my baby brother with a drain sticking out of his head.

***

Pain is something you can build a callus to try and bear. This guy has had eleven open-heart surgeries, so this process is not unknown to him. But messing with the brain is messing with his head. He says the pain is so intense that only morphine makes him feel "a little better, but not a lot." They decided not to bore into his skull because they can get just as effective results from a subdural (under the skin) drain placement as making holes. But the surgeon told me that normally when he cuts into a patient's head, he'd see white from the bone. With my brother it was all red, no white. And because he has been taking Coumadin for almost all of his life, his blood doesn't want to clot and stop bleeding.

The evening after the surgery, I felt like I couldn't get any answers. They couldn't find his bag, with his phone or chargers in it, and I would be damned if I left before I secured a means to be in contact with him. It was finally located, somewhere, after they'd tried to tell me I had walked off with it that morning. I kept asking questions and the three nurses assigned to him kept putting me off, saying I had better talk to the neuro team. My brother was very very out of it; he wasn't going to be a reliable narrator, and worse, he kept asking me if he was going to die, and saying he didn't want to die. That broke my heart but gave me hope that he does have the mental strength to fight. At home, my parents were going out of their minds with worry. I finally cornered his lovely night nurse outside the room and was trying to make sure she had my phone number when he started yelling at me from inside the room. He didn't want me talking to his caregivers out of earshot. He wasn't giving me answers and they weren't giving me answers, and I had an entire crew of concerned people asking me questions. I promised not to talk to anyone without him as long as he GAVE ME INFORMATION. The next day, he called me and put the neuro surgeon on the phone while they were there doing rounds.

During the operation, they were able to remove a lot of blood. The surgeon said it came "pouring out like motor oil." There was new bleeding as a result of the procedure, which is what they feared when they had recommended against surgery. Instead of one spot, where the original spontaneous bleed had been, it was bleeding at the top, bottom, left and right of his brain. There was output coming from the drain, but the CTs they did 3, 6 and 9 hours after showed he was stable. They were pumping him full of coagulating medications, which "are very potent" and also not good for his heart. He also isn't making many platelets, so they've continued to give him those as well. At this moment they have to choose between the brain and the heart and they are focusing on the brain, even though the hematology team and cardiology team are watching him closely, as well. Encouraging the blood in his head to clot could also lead to bad clots that could get to his heart. This is all very disheartening. And unfair. The neuro said he's doing very well thus far and it'll be 72 hours of hell but then they expect things to get better. They do not anticipate any issues, but they will be ready if any arise.

***

I'm writing this about 65 hours post-op. It's 4am. On the day of the surgery he was in a lot of pain but still managed to make a "that's what she said" joke to a nurse putting in a particularly difficult IV. Yesterday they let him have more than a wet swab in the mouth, then ice chips. Being able to eat gave me hope that they didn't think they'd need to do emergency surgery on him at any moment. I brought him Gatorade, Sour Cream & Onion Pringles and ginger ale. He had red Jell-O. Today he got another stable CT, so they let him sit up at a 45-degree angle, walk around the unit with his nurse and use the bathroom. But he called me several times in misery, saying his entire body hurt from lying in these crappy beds for more than a week (he's starting to get not-open sores from the bed) and that he felt like an 18-wheeler had run over him, backed up and run over him again. He requested a Dairy Queen Heath Bar Blizzard, which was the only thing he ate today. If he can have a couple more stable CTs, they might talk about removing the drain. There has been no new output since yesterday.

When I was there tonight, rubbing his forehead and the pinching the bridge of his nose as I have been doing for 3-5 hours every day they let me in to try and get him relaxed enough to sleep, I noticed one of his eyes was suddenly kind of bloodshot, and there was swelling on the left side of his face. I told the nurse, who paged the neuro team, and they did a stat CT. As they were pushing him out the door, he tells a nurse, "DO NOT LET HER LEAVE." I don't have a good way of finding out what the radiologist said, and no way to know how he's doing tonight. That sucks.

Each day gets harder and harder to leave him. Yesterday at 9pm, I was trying to explain that I still needed to go to the grocery store and he was begging me to stay. I'm starting to see why my mother would spend weeks and sometimes months in the recliner at his side, only leaving to use the bathroom or a quick shower in the nurse's locker room. When I told her I won't drink anything after noon to try and prevent having to use the bathroom at the hospital, she said that's what she did during those times after his surgeries. He would ask her, "do you really have to go to the bathroom?" And I can picture exactly how hard that must've been for her. What I can't imagine is what it's like for her now, when she's stuck at home and can't be there. I've explained that I'm representing all of us, and when my hand is on his forehead, it's all of our hands on him, trying to make him feel the love we and the dozens of people on multiple continents who are praying for his recovery are sending. It's cheesy, but it's what's getting me through it. That and repeating all the prayers I can remember from CCD.

***

The thing that I just can't shake about this, and life in general, is just how damn unfair it is. This guy was born with his heart on the wrong side, missing a left ventricle. He has one lung, liver cirrhosis, a spontaneously spewing left leg and now a brain that might randomly bleed. The news that this ordeal could very easily happen again next week, next month, next year is probably eating away at his hope for a "normal" life. That said, he IS alive, and his brain is capable of still coming up with smartass answers to my questions even after the trauma of surgery. The same can't be said of so many other people who didn't have a chance.

H is constantly reminding me that life isn't fair. That I have a warped sense of justice, as if it's actually possible, when it just isn't a lot of the time. Deep in my heart I know this, yet every day it continues to poke me, aggravate, make me irate.

Today people at our company took a knee for eight minutes and forty-six seconds in memory of Floyd George, who was murdered by law enforcement in Minneapolis. Cities have been on fire in the last week. Looting, rioting, marching, protesting. To try and start to fix hundreds of years of injustice, somehow. People's anger had nowhere to go. At least anger can lead to some kind of action, and possibly a resolution. To me it is infinitely preferable to despair.

***

Kash just woke up, ran to our room and found I wasn't there. When he woke up his father, he said, "Mommy went to the hospital." I went up there, gave him some water, walked around holding him and sang the full roster of baby songs all the way from "She'll Be Comin' 'Round the Mountain" to "Hush Little Baby" until he relaxed enough to fall back asleep. I was able to comfort him, stroke his hair and rub his back. Six miles away my brother is suffering alone, with only the bloops of the monitors and the hum of the negative pressure fan to lull him to sleep. I hope he's dreaming of seeing Disney World.

the 'rona

We are now a full week into Illinois's Shelter in Place to stop the spread of the COVID19 virus. To say I'm anxious is an understatement. We didn't hoard (ok, maybe I do have a couple more boxes of Triscuit and Wheat Thins than I normally keep) so I'm scared we won't be able to find toilet paper when the time comes that the 15 rolls we have left are gone.

There are people who are not taking the social distancing recommendation: staying six feet away from others and only leaving the house for necessary tasks like getting food or going to work if you're an "essential" employee. I wish I could say with certainty that every member of my family is following this advice, but I suspect my father--whose mantra is "nothing happens"--can't help himself. This is terrifying because, while he is 70+ and definitely at risk, my mother is immunocompromised from all the chemo drugs, and susceptible of getting very very sick if she gets it. That said, she's "essential." She works in the hospital and I'm trying very hard to convince her to retire. With very little success.

The local hospital is putting employees that don't have much to do right now (like outpatient mammography technologists) into a "labor pool," and sending them to do needed tasks around the place, like sanitizing and cleaning and picking up trash. At our community hospital there are nine cases of COVID19. I can't even keep up with these statistics. I think it's something like 85,000 cases in the United States at this point. The numbers don't really reflect reality because we aren't testing enough people.

There's so much to say about the political state of the world, but I'm trying to focus on how people are pulling together--my alma mater has come up with a ventilator they are putting into production very soon. The vacuum people, Dyson, also invented a ventilator and are getting 55K in production. Abbott Labs in the Chicago area invented a 15- or 13-min (depending on the result) test that is approved by the FDA and is getting out for use next week. Plus there are various therapies and vaccines that are in clinical trials.

H and I are working from home, as we are essential-adjacent, but we know people who have lost their jobs and are struggling. My brother, for whom I worry the most, is reluctantly staying home and working from home (also essential-adjacent) and probably withering from loneliness in his big old house alone, though he'd never say so. H's folks are also sheltering in place, the professors teaching online and the others working from home as much as they can.

We have the kids at home with us; our daycare shut down along with the shelter-in-place order. "Working" while the kids are home has been challenging at best, and I pray that our inability to be as productive isn't going to affect our employment. I realize how lucky we are to even make that statement, in light of how many people applied for unemployment this week--3.3 million--blew the previous record out of the water. I heard on the radio that unemployment is projected to hit 30 percent. It was 25% during the Great Depression.

These are strange and terrifying times. I can't recall how many times I've heard the word "new normal." But nothing about this is normal. We have tickets for the August 13 "Hella Mega Tour" at Wrigley Field concert featuring Green Day, Fall Out Boy and Weezer. We had been searching for a fourth person to join H, my brother and I. However, I suspect that isn't going to happen now.

Ro's kindergarten roundup was canceled in early March. She's supposed to start school in the fall, and we were planning to hurry up and sell our house, then buy another one in my parents' school district--ideally so she'd go to school next door to their house. I don't know what is going to happen now. Maybe she will go to the school near us and the trajectory of our lives will be much different than what we had planned. I guess that's the way things always go, though.

The thing that terrifies me the most is H or I getting this and leaving our children without a parent; flawed as we are, no one will love them as much as we do. I have recurring nightmares about this. Only slightly less frightening is that a loved one will get this and we will have to contemplate their suffering (or worse) without being able to be there with them. I've already started hearing about people losing grandparents without having been able to say goodbye. No one is having funerals anymore, either.

Dr. Anthony Fauci, the nation's go-to guy about these things said that a highly contagious symptom-less upper respiratory virus like this is a worst-case scenario. Even worse than Ebola, because it's very obvious who has Ebola and you can only catch that if you're in very close contact with that person. They are finding COVID19 on surfaces of those cruise ships 17 days after everyone had been off of them. Not good.

The grocery and convenience stores are still open. The truck drivers are still making deliveries. Some people are acting like this is a staycation. People are cheering for healthcareworkers, who are starting to become infected and dying here, as they have been in China and Italy for some time. Things are going to get much worse before they get better. And yet, I'm hearing about people secretly meeting up to work out together or have game night with booze. Do they think they're invincible? They know enough not to advertise what they're doing, so clearly this is just selfishness, right? But because of their weakness we will all be trapped in our homes and there will be unnecessary deaths. And that makes me so mad. SO mad.

My biggest struggle is that those who are complaining about being stuck at home, or talking about online shopping or day drinking or hobbies aggravate me. It's not their fault, but I can't look at one more person mourning the high school seniors' lack of Prom or Graduation without wondering how bad the wailing would be if those promising youngsters were instead being drafted into a war. And those who are so incredibly inconvenienced by staying home getting together to work out and potentially spread this around further, they make me irate. Probably way more angry than I have any right to be. Unfortunately for them, I will be remembering those who joke around about being "an irresponsible human" and going out for drinks or dinner when we should have been staying home. I see them in a different light and it makes me sad, then guilty. Because who am I to be judging people? This is the stuff that keeps me up at night: Fear, judgment and guilt.

averted

The baby turns one in four days.

He’s pulling himself up—sometimes even by using his teeth on the ottoman, couch, his father’s shoulder, his mother’s thigh—to climb.

He often stands at his crib and sings the songs of his people (early birds) until his mother (night owl) peels herself out of bed. He always greets me with a smile that propels me through to the end of my often long and frustrating days.

He leans toward me when I approach someone who is holding him. Almost to the point of falling out of the person’s arms in order to get to me. This is a situation I have only experienced as the holder: A physical obstacle my daughter scrambles over and launches off of to get to her father, when he comes into view. I had always wondered what it would be like to be so unquestionably somebody’s number-one choice. It’s all that I’d hoped for.

He’s figured out how to put shape blocks into their respective-shaped holes. Obviously, this signifies that he will be the one to unlock the mysteries of a non-communicable deadly plague on society.

He brings so much joy to everyone he encounters: his sister, parents, grandparents, family, our coworkers, daycare, neighbors, people at the store. I swear, that smile can light up entire city blocks. And he gives it away to everyone!

He’s constantly examining any sort of mechanical object as though he’s formulating a way to take it apart. I can envision him shrugging at me, holding the innards of an Alexa and smiling, in the not-too-distant future.

We are all sick this week. The last two days it has been very hard to get him to stay asleep—which we had gotten complacent about because he’s a tremendously better sleeper than his sister (I fear she’s inherited my night-chronotype and has a lifetime of morning struggles ahead that I know well).

I had been pacing and singing from 8-10p to get the boy down. Nothing was working. Not the 1970s Bollywood classics, not the laundry list of nursery-rhyme songs, not even the bulletproof Vampire Weekend album with the chandelier. I resorted to singing a couple songs where I list every single person we know. I like to do this with the kids so they don’t forget about our far-away family—I recall my mom doing something similar, and to this day I feel a kinship to my India cousins though I’ve never interacted with them for more than a couple weeks in grand total. I was singing “He’s Got the Whole World in his Hands,” like I have done for both kids about 22,000 times: All of Jon’s family, all of mine, our good friends, kids at daycare, everyone invited to his birthday party on Sunday. I always end with Jon, myself, Ro and him. But for some reason, this night, I choked up and called out his two older sisters in heaven, too. I think of them often, but tonight I ached for them with a pain I’d only ever experienced during labor for both Ro and Kash. I cried harder during my deliveries over those two lost babies than I did for any physical pain—and I separated my pelvis and couldn’t walk for four months after my daughter was born.

I croaked out the rest of the song and let the tears flow. He demanded another round of singing and awkwardly fell asleep askew in my lap in the rocking chair. I put him in the crib and backed out slowly.

I had no business looking into old colleagues on LinkedIn and watching J.Lo’s performance at the VMAs and trying to search my texts for exactly what Queen song it was that made us go into that dive bar in the labrynth of Santorini where we danced our olives off and had the best time in a LONG time. It was pure stupidity for me to be up until 11:51 pm.

Except.

We had causally draped a flannel blanket over the side of the crib for no real purpose. I had put him down and covered him with a heavyish muslin blanket. Normally if he cries after the initial sleep, we let him work it out for himself. But this night he cried and I looked at the monitor—because I was up.

He was struggling. The muslin blanket and the flannel blanket were wrapped around his head and he was twisting them tighter as he tried to get them off. I flew into the room, ripped them off, grabbed him and held him to my heart while I whisper-screamed every single prayer from CCD I could remember. I’m still shaking.

Thank you God. Thank you, big sisters. Thank you, Nani. Thank you, universe. For looking out for us. Because I don’t have it in me to bury another one.

twenty-two weeks

We did the math. Frankie and her siblings were born right around the time I got pregnant.

Madelyn was so excited, she was sending us photos even before she was even allowed to pick the dog up, after the requisite eight weeks. And after she brought Frankie home, I'd get cheery texts on Thursdays like, "Happy 15 weeks!"

Gray and white, Frankie is an Italian greyhoud with a tail that has so much wag that my two-and-a-half year old can't stop talking about it. In fact, Ro talks about her a lot when she's not around.

"Who's the most beeeyeeeaaauuuutiful dog in the world? FRANKIE DOG!"

I think the feeling was mutual. Frankie would bounce around from couch to floor to kitchen to couch to Ro, to dining room and back. The dog is taller than my kid when standing on two hind legs. Then she'd come to a rest--right on my growing belly. I swear, that dog knew I was growing a child earlier than almost anyone else. I always felt like she was saying hello to the son the rest of us have to wait until August to lay eyes on.

Having a dog-niece is the perfect situation for us. We are hardly home, either at work or at Nani's house, so it'd be unfair to keep any animal alone for so many hours. But Madelyn's dog could come and play, giving our kid the joys of having a pet without as much responsibility.

Madelyn tried to keep up with the dog's boundless energy with walks and nonstop playing at home. They were together 24/365--a perk of working from home. In fact, at 13 weeks (right after they put in the cerclage to keep my baby inside), Jon built Frankie a "doggie deck" so she could sit next to Madelyn's work desk, watch the happenings outside and nap in the sunlight. You know, re-energize for pushing boundaries. Like any growing child.

They'd come over on the weekend, chasing each other (and Ro) around the yard, catching the ball or Frisbee. But last time, a few weeks ago, Frankie found a way out through a gap in the fence. Madelyn chased and called her for a long time before bringing her back home. Madelyn was visibly weary and worried, just like any parent of a toddler I have ever known. Frankie just jumped around and played as if she hadn't given us a scare.

Tonight, Jon was taking the laundry to the washer when I heard him yell in a strange tone. I hobbled downstairs, not fast at all, but he wouldn't say what had been in that text message. He was dialing. I could hear Madelyn sobbing hysterically on the phone, and I only understood "Frankie. Hit by a car." Ro was prancing around us, sing-songing something about princesses. She heard the name and stopped to ask, "Is Frankie coming over?" Even though Madelyn said not to, Jon got in his car and drove to the city. I sat on the floor and cried. Ro gave me a hug, because "that's what makes people feel better when they are sad."

Ro realized something was wrong. Normally, it's rare that anyone but her father is allowed to do the bedtime routine. But she let me rock her and hold her. I didn't let go until long after she fell asleep. All I could think about was the incident at the mall. Ro and I had met a friend to play at a series of tubes, slides and climbing blocks semi-enclosed in the center of the mall. Everything was going fine until I saw my usually shy toddler smile at at me, turn and bolt away at top speed, right out of the entrance to the enclosure. I don't walk very well right now, let alone run, so I couldn't possibly catch her. Ro got about 15 stores away from her bellowing mother and almost turned the corner before she decided to stop. I cannot describe the pure terror that rocked me to the core.

So I have an idea how Madelyn may have felt when Frankie squirmed away from her efforts to put on the leash at the park, eluding her for 20 minutes before running right into the street. It's something she has never done before, and will never get the chance to do again. My heart breaks for Madelyn. And my heart aches for my child, who will likely not stop asking about Frankie for a very, very long time to come. Rest in peace, Frankie. I wish we had more time.

must be the zombies in the house

Last night was the worst night of sleep our kid has ever had. She generally fights us for two hours and reliably stays down until exactly 1 a.m. but pretty much stays in her big girl bed until we come for her in the morning. Last night, I was working on a quilt for my good friend's child who is now FIVE months old (I know, terrible friend) and came to bed at 2 am. Ro woke up with screams so loud and persistent it sounded like she was tearing up her throat. Until the break of day. Jon and I took turns.

In the morning, he told his teammates, he had the most sleep out of all of us--a whopping two hours. We couldn't figure out what the problem was. Were those 2-yr-old molars coming? Tired of mommy being so tense? Had she "seen a zombie" in her room like she told the kids at daycare?

"I want a blanquet! NO NO BLANQUET!"
"Mommy, rocking chair! NO I DONT WANT ROCKING CHAIR!"
"Mommy, milk in a cup! I DON'T WANT MILK IN A CUP!
"Hold me! DON'T TOUCH ME!"
"Come here, Mommy! LEAVE ME ALONE!"
"I want to go potty! NO I DONT WANT TO GO TO THE POTTY!"

It was hell.

To add insult to injury, when she had stayed at my parents' house on Saturday night, she slept 12 CONSECUTIVE HOURS with zero complaints.

Of course, today she wakes up in a foul mood but as soon as Jon take her to daycare, she was a smiling bouquet of hydrangeas.

I'm up again late (gotta do the binding), so I will be destroyed tomorrow. Good thing I'm on call.

no matter what happens tomorrow

I don't think the people of this country will allow it to go off the rails. My parents didn't give up everything to come here and make a better life for us for it to be frittered away so easily. I have faith in the American people, no matter who is elected.

But I'm still nervous.

in front of the lens

Today was a gorgeous day. November 5 and it's 71 degrees in the Chicago area? Wow.

And what wonderful timing that my former colleague who shoots portraits as a side hustle was free to meet us in a forest preserve and capture the three of us with purpose for the first time since those photographers who sucker you into giving them all your money in the hospital when you're still delirious from baby-hormone-joy.

Because there's no time like the last minute, I spent most of the morning tearing through my closet for better clothes to wear than I had originally planned, taking badly angled photos and texting them to the world for advice. Then I raced to the store and bought four more things that didn't work out. Per pp, in her infinite fashion wisdom, I ended up going with an sweater and skirt I've had for years but had never thought to put together.

Ro was fantastic. She just wanted to run and run, kicking leaves and sliding like a base-stealer in the mud. She got to eat a sucker, too, which always makes for a red-letter day. Those gray tights had their moment in the autumn sun, but are possibly too far gone to ride again.

Later, she ran around even more at Kaiya's birthday party, where we all made tortellini under the instruction of her boyfriend, who happens to be a chef. Delicious! It wasn't that far off from making samosas, so I may have had a leg up on everyone else. He said I was ready to open my own pasta shop. Flattery, flattery.

It was really nice to see some of my oldest friends. Highcon is moving back to Chicago, and brought his main squeeze for us to meet. Ri and C's mini posse was running circles around the house with Ro. The wine was flowing. The salted-caramel-mousse cake was scrumptious. There was elderberry infused into the water and Cheerios ground into the carpet.

A lovely day, through and through.

vacation

I hadn't had a non-maternity-related time off of work in something like two years. We went to California for a week, and MAN was that nice. I was stressed about traveling with a 10-month-old, but she was a champion.

September 18, 2015. First time with her toes in the sand! Those swimming lessons paid off, in that she wasn't scared.

We spent some quality time with Jon's entire nuclear family enjoying cottages on the the most beautiful United States beach I have seen (Del Mar Resort within Camp Pendleton) in San Diego, then drove to Ventura (Jon's hometown) and met up with relatives and friends, and visited the resting place of our baby. 

Ro had a lot of firsts:

• First time on an airplane (a few very brief rough spots, but she did really well and took a 1.5-hour nap)
• First time eating In N Out Burger (only fast food she is allowed saved for the rare Portillo's treat)
• First time in a long car ride (took us FIVE hours to get from San Diego to Ventura, but we had to make a 45-min pit stop due to a meltdown. Ro glares at us at the mention of "carseat" now.)
• First time seeing the ocean
• First time frolicking in the ocean (assisted) with her cousin, D
• First time (helping Mommy) roast a marshmallow over a campfire for a s'more
• First time sitting in the sand with Aunt M and tasting it (the gross flavor and texture did not deter her from trying it again)
• First time climbing three (!) flights of steps at her Aunt A's house completely unassisted (and with great vigor)
• First time meeting her great-grandmother
• First time staying in the "Penguin Palace" room her Aunt Madelyn made at her grandparents' house
• First time eating sushi (she LOVED baked salmon and the seared tuna; the teriyaki chicken and rice were just ok)
• First time going to the church her daddy grew up attending
• First time eating guavas from the tree in someone's yard
• First time petting animals (a bunny and a cat), and learning to say "cat"
• First time going down a park slide (perhaps the daycare lady has taken her--but to me it was a first)
• First time actually waving with purpose (favorite person to wave at is her grandma).
• First baseball game at Dodger Stadium (next will be Wrigley)
• First hilltop sunset overlooking the ocean (and remembering her sister)

There were probably more, but she had a blast. It was a really great trip we will cherish forever.  

 The Dodgers lost, but it was still a fun time. September 21, 2015. Ro: almost 11 months

fruit and flowers

Jon, this anniversary (lounging on a beautiful beach) is going to be really tough to top. But even if the ones to come are full of laundry and homework, it'll be nice just to be together. I love you.

Photo by SecondPrint Productions

This was the best day of nonstop crying I have ever had. 

what i suck at is efficient balancing

#6: What is your character good at, comfortable with? Throw the polar opposite at them. Challenge them. How do they deal?



Ha. This is perfect.

I have always wanted to be a mom. I clearly remember thinking to myself in junior high: Self, it doesn't matter what you do for a career--you can't die without raising a baby. I'm genetically inclined toward the snuggling, the loving, the encouraging and the supporting that moms do. What I am not naturally equipped for is all the other required stuff that is often not advertised: The juggling, the organizing, the planning, the foreseeing the future, the preparedness. The TIME MANAGEMENT.

So the last five months have been exactly what Pixar Rule #6 is all about for me. Not being able to sit, stand, lie down flat or on my side, bend, kneel, shower without assistance, let alone walk without a walker for eight weeks was quite a curve ball. On top of having delivered a small human for whom we had to do everything but breathe. I'm dealing. I completed home physical therapy and managed to move again without equipment (though it felt like the hobbling was going to be permanent), but I would be dead on the bathroom floor without my A Team: Jon and my mother.

And just when I got a semblance of an idea about what needs to be done and how, I went back to work. That is another post, but let's say going back to working full time three months post baby to a job where you used to put in 50-80 hours a week has been challenging, indeed. I would be dead on the street without the A Team.

So the house isn't as picked up. Exactly zero personal projects get done, including decorating the baby's room and organizing her clothes before she's gotten too big for some of them. I get my news from Facebook now. And there is certainly no time for television. But we are getting by. Again, shout out to the A Team.

I try to keep in mind this paraphrased advice I got from a very wise lady ("The Wife" to whom Omar is "Mr. Wife"): As long as you have the same number of people at the end of the day as you had at the beginning, you're doing all right.
 

Brother. It is a little ironic that the one celebration that you could/wanted to spend with us on your actual birthday in a very, very long time didn't end up happening because I got scared and went to the hospital. I feel bad that you were hanging around near the restaurant for hours was while I was hooked up to monitors trying to figure out if those contractions were real and if I was leaking amniotic fluid (not really and no, everything turned out to be fine; it just took a really long time to confirm).

As much as you would never admit it, I know it's going to be different when this baby comes. Your wants and needs have been first priority for so much of the past three decades--how could they not? I don't resent you for it; I worry about you as much as mom and dad do. I know you have been wiggling out from under the parental blanket of concern for a long time, and you've done an exceptional job proving that you are your own man who can handle your own business. We don't need to worry, but it's not something we can turn off.

It has been tremendously hard for me the past few months to be the person that isn't allowed to help, can't even get up from a chair without extreme difficulty and is basically at the mercy of everyone else. The biggest lesson I've learned during the last few years is that apparently I can't control everything, which was clear to you since you were just a baby. It's probably just as hard for you to now be the one worrying, waiting for a call that everything is ok...or not. We've both done a lot of growing up in the last few years.

Happy Birthday.

36

So here I am, on *this* side of 35.
And here we are, on *this* side of 4 a.m.

***

I've never been melancholy on my birthday, but during the last few months I've found myself at the top of the world, taking in a deep breath of gratitude...then BAM, I get a glimpse of the straight drop ahead and my stomach is suddenly in my throat. I guess the only nice thing about emotional rollercoasters is that if you (and your understanding family) can ride it out, you're back on an even keel soon enough.

Last week, Syar turned 26. Do you guys remember when she was a precocious 16-year-old commenting here with all the wisdom and wit of a much more experienced person? Then how we blinked twice and now she's a grownup lady? It's so crazy how much she has grown but stayed the same. And how I feel like I know her, yet never have met her. Oh, blogs.

***

My mom has always taken the day off work on my birthday. I never understood why, especially when I still had to go to school. I mean, if she can't hang out with me--and this day is all about me, after all--then what's the point? Even now, 36 years later, she took the day to be home, cooking and shopping and who knows what else while I was dealing with conference calls and frantic instant-messenger requests and mounting email, attempting to solve problems.

But now that I may get to bring somebody new into the world, I kind of get it: My mother might just want a day to herself to think. Maybe remember all the stuff before I showed up and what she had to go through to get me out and all she had to do to make sure I even made it to 36. I wonder if 36 years from now I might take my child's birthday off to think about these months of bed rest and no carbs and having to walk around like an 96-year-old and only going to the store once a month (if they have a scooter/wheelchair). And how it makes my damn day every single time this baby kicks me to show me that she's doing ok so I don't freak out. Is it possible to believe you have a great kid even before you've met her?

People kept asking me what I had planned for today, and honestly, there was only one thing I can say for certain. There will be ice-cream cake. There is always ice-cream cake. It'll be one sad, sorry August 14 when my mom isn't around and there won't be ice-cream cake. It just doesn't taste as good any other day. I'm sure I don't have to tell you that she didn't disappoint.

***

In general, I have a pretty low threshold for decision-making. You know, decision fatigue, when you are supposed to be making a lot of important choices in a row, but the weight of all that deciding has piled up on you so you are standing in front of the refrigerator, paralyzed and frustrated because you JUST DON'T KNOW WHAT TO EAT. Just choose! Whatever you want! It doesn't matter, just pick something! Like, now! You haven't decided? Hurry up! Everyone is waiting on you! I feel like the world is my refrigerator with its French doors flung open to reveal thousands of delicious choices, and everyone is demanding that I make up my mind RIGHT NOW. Except I can't make my mind do anything at all, let alone make that final choice between spaghetti and soup. Because what if I take a bite of spaghetti and immediately realize I should have gone with the soup? Doesn't the world understand that scenario is a risk I'm just not willing to take?

What scares me is that I am soon going to have to make hundreds of decisions a day for a person incapable of holding up her own head. And I'm sure that by the time I actually figure out how to comfortably make those choices, she won't want me to decide anything for her anymore.

***

Being alone all the time is getting to me. All day, every day. Thank God for conference calls.

I hate to be alone. I would certainly be one of those people who were asked to sit in a room with an electrical shocking device for 15 minutes with their thoughts who ended up shocking themselves to avoid having to be alone with their thoughts for 15 minutes.

It doesn't matter if the other people are somewhere else in the house doing their own thing and not interacting with me at all; just knowing they aren't far is good enough. I used to lie awake at night in my dorm room, only able to fall asleep when I heard my roommate's key in the door. Perhaps that was because I worried she'd be jumped on the way home from the library, but still.

***

I just spent 15 minutes trying to put a cover on one of those snuggly, noodly pillow things that pregnant ladies cuddle in order to sleep for more than 10 minutes at a time. About three-quarters of the way through that ordeal, I realized the thing already had a cover on it, which is probably why it was so difficult.

Pregnancy brain is real, people. And at this age, I don't think I will ever get my wits back.

house arrest isn't so bad...most of the time

Today is 27 weeks for me and this baby. Hooray! The doctors are saying 28 is good, 30 is great and anything more than that is gravy. Of course, I am expecting we go the entire 40 together, but a lot of other people are not so sure we'll get that far. A girl can hope. I really just want a fully cooked turkey in time for Halloween. 

It's probably apropos that I bingewatched Orange Is the New Black during my incarceration, stuck on the upper floor of our house, only to be let out for doctor appointments and the occasional work meeting. You'd think that I'd be getting all kinds of bookreading, bootieknitting and bookshelforganizing done with all this *free time,* but I'll let you in on a little secret: I'm actually kind of sedentary, so I haven't really gained time.

Basically, I am still working kind of a lot of hours (trying to convince them I'm just as good from home as in the office), and I can't concentrate on anything for more than 10 minutes, which makes me less effective at work. That makes me feel guilty and stay logged in for longer and longer.

And then there's the emotional rollercoaster (hello, hormones!), so I've tried to keep from coming here and whining, because I truly am so thankful and grateful for all that I have. In fact, there was a Facebook thing going around where people posted three positive things about their lives for five days. Because Facebook is so easy to use from my phone while lying down, there was no question that I would participate.

DAY 1: 

1) Jon. Each day I have more reasons to thank my 2006 self for taking a risk on something completely unknown and have it work out in the best possible way.

2) My mom. If any of you have the pleasure of knowing her, that's all I need to say. I strive to be half the woman that she is.

3) Cheese.

DAY 2:

1) What I've learned. My mom has always said, "people can take anything away from you but not your education." And this isn't just limited to book learning.

2) My job. My career path has certainly been a rollercoaster, but I ended up in a place working with and for some wonderful people. Some days I know that something I did may have contributed to saving a life, and that means a lot. Even if my job has never been represented by an animal in a Richard Scarry kids' book.

3) Well-written, brilliantly acted, thought-provoking, satisfying, leaves-you-hungering-for-more television programming.

DAY 3:

1) Having the good fortune to be born in a country where I have had so many opportunities and freedoms, and during an era where a woman of color like myself is not held back as we once were.

2) Clean, running water, available at varying temperatures any time of the the day in a climate-controlled home.

3) The Internet. Holy cannoli, how did we ever live without it?!?

DAY 4:

1) I grew up without any extended family on this side of the world, but I've been blessed with the most loving and supportive friends a person could hope for. They have gotten me through the very hardest of times as well as created some of my best memories.

2) Podcasts.

3) Glasses and contact lenses. Without them, I'd be stumbling around squinting since 1991.

DAY 5:

1) My family is in relatively good health.

2) My friends are in relatively good health.

3) I still have my health. Being healthy is WAY UNDERRATED.

I can't emphasize that last sentence enough.






 

clearly at some point there will be bad news, but in the meantime

I have been told on the regular that I am a Negative Neddy. There's not a lot of proof to refute that, so here we are. Sorry this is long, but enjoy the positivity while it lasts!

1. This baby is now at 24 weeks (the produce-size equivalent of either corn or a cantaloupe, depending on whom you ask). That is the furthest me and a baby have ever made it together, so each day is new terrain to discover.
2. This cervix is holding steady, stitch in place. Steady enough that the specialist no longer thinks I need it checked via ultrasound every week. Let's not repeat that bit of news too much out loud or we may jinx it.
3. This baby's heart has all the major components, and they look to be properly formed and working well together. This has always been a concern because heart defects run in my family. If this is the first you're hearing about that topic and you have 12 hours to kill, look up the label "brother" on the side rail and read the 111 posts about him. There could still be problems for the baby down the line, but for today, that ticker is in good shape.
4. If it weren't for the cloud of terrifying possibilities hanging around--that wakes me and keeps me up for hours in the night telling me I'm leaking amniotic fluid, and interrupts all sorts of enjoyable television and not enjoyable conference calls with fears of contractions at every ache and pain--I would really enjoy being pregnant.
5. This baby kicks me. A lot. And I'm grateful for each and every reassuring jab that she's OK in there.  
6. People have been SO wonderful. 
1. Strangers.
2. Coworkers who didn't give a crap about me before.
3. Everybody who doesn't judge me for my extremely, um, ethnic wardrobe of Auntie Patrol-approved muumuus. I scoffed when my aunts sent them for me and now I cannot live without them. (I may never voluntarily wear pants again.)
4. Friends who send me cards.
5. Friends who message to recommend books and see how I'm doing.
6. Friends whom I have gotten to know better because they love someone I am friends with and have reached out with concern and much-appreciated advice about such a scary time from their own experiences.
7. Friends who come over to spend some time with me, won't let me get up to be a proper hostess and don't make me feel bad about it. 
8. Friends who bring their kids over so I can watch them run around and my baby can hear their happy little voices.
9. Friends who don't bring their kids over so we can have an adult conversation. Or watch TV. Or both.
10. Friends who come over and do stuff to help Jon. Even little things like keeping me company so he doesn't have to worry about dinner. And then he can have a few minutes to look at ESPN.com without feeling guilty that the dishes are piling up. Because now Jon has to do EVERYTHING. He has never complained once about it, but still.
11. The "Police" (my mom and my husband) who don't let me lift, walk, use the stairs or pretty much do anything but keep my feet up. I could go on and on and on and on and on about how much these two have done to make my life bearable, but I'll spare you. They are truly my A-Team. The only thing I can hope to give them in return is this baby.
7. The Police let me out on parole and took me to the fabric store for an afternoon. Best afternoon I've had this year. And not only because I got to drive around in the scooter.
8. I have become a legitimate Facebook stalker. Seriously, the OCD is in overdrive and I need to read every single post. And repost. And pontificate about whatever social issue needs pontificating about--such as the overuse of the Oxford Comma. Also, I'm pretty sure I notified EB that her prom date was engaged about 30 seconds after it happened.
9. Everyone but my brother pretends they are not annoyed by my Facebook activity, and some of them even enjoy my posts. Sweethearts.
10. I have discovered Pinterest. I am desperately trying not to fall into that vortex. But I can only browse for about 30 minutes before looking outside at our weedy yard feeling unproductive and useless compared to the Pinterest prizewinners with their beautiful homes, yards and handmade goods. And apparently a lot of time.
11. I have been knitting. I wish I were a lot faster. But then I worry about giving myself carpel tunnel.
12. I have been working. A lot, but not too much. That is ok because:
1. I would be going out of my mind alone all day every day. And worrying.
2. Jon built me this awesome monitor-over-the-guest-bed-hanging-structure so I can truly lie down and work with a wireless keyboard and mouse. My brother gave me a practically new 22-inch monitor so I don't have to crane my neck. It rocks. 
3. I'm trying to get all the crap I do at work in some semblance of order for the people who have to cover for me when this baby comes out. So I am learning to use Microsoft OneNote.
13. I have probably seen more commercials in the last two months than I have in the last two years. The story behind this bored pp (though she'd never admit it) so I will summarize: We only watch dVR, Hulu or Netflix downstairs in the mancave. Jon sold the old jailbroken AppleTV upstairs before they could come out with a new one to make it undesireable. Then I got put on bedrest and can't go downstairs anymore. So unless I want to watch on a small screen in my lap, cable with commercials it is. DIYnetwork has the best ones. 
14. Next week Jon's sisters, M and A (plus nephew Declan!) will be coming for a visit. Madelyn will also come back to hang out. It's always great to have them around.
15. I am just really happy at this moment. 
16. I was worried I complained too much on here, and nobody wants to read blogposts describing the circus in my head, so I will try to post more often now that I'm a little less scared out of my mind.

Again, thank you all for your prayers, your time, your kindness and your love.

necklace

When we were in San Diego, having a wonderful time watching our nephew take some of his first, wobbly steps, Jon's sister A gave me a little box. It was from all his sisters. My sisters.

 

 It's emerald green--the birthstone for May. It is perfect. 

I may not be able to wear it every single day, but I will cherish it forever.

reversal

I have been working in a hospital on and off for more than a third of my life. I'm used to the noises and the fluorescent lighting and the terse whispering and the weary-looking eyes of nearly everyone there. And unfortunately I have spent way too many hours in hospital waiting rooms. But when I found myself sitting on a cart in Emergency Department Pod A trying to wrap my mind around the fact that my water broke 23 weeks too early, I went sort of numb--and all I could think about was my brother.

Is this what it felt like for him all those endless mornings at 4 a.m. when he was getting prepped for surgery? When everyone was bending over backwards to make him smile or be comfortable and nothing really worked but he pretended that it did work just to make them feel like they were helping? Did it hurt him this much every time a nurse went digging around for an IV? Did his muscles cramp up like this? Was it just as annoying to have to drag a beeping pole to the bathroom while holding the back of a gown closed? How did he lie like this for WEEKS at a time? I was only there for three days. Oh my God it must have been so much worse for him. HOW did he endure this? How did he not complain more? How did he get through this over and over, so many times? I just wanted to see his face.

But I couldn't call him. He was in St. Louis, probably sitting at his desk toggling between work and ESPN. He was looking forward to holding his niece or nephew someday. Making plans to indoctrinate the child to root for Chicago teams despite the kid having 50% Los Angeles DNA. I kept picturing his expression on the FaceTime when I told him I was pregnant (he was the first person I wanted to tell)--usually so stingy with his smiles, he was absolutely beaming. It had been a tough time and it was nice to give him something to be happy about. A few days later, I got a text picture of him holding a friend's newborn and he looked so happy. I could just picture what a tremendous uncle he will be. For years I have said my children will call him the Hindi name for Mother's Brother: "Mama," and he has threatened all kinds of bodily harm if I made good on that promise. But as soon as he heard there was going to be a Baby, I was certain he would love my kid more than anything in the world--even if she called him "dookieface." This news was absolutely going to break his heart. If I could delay that in any way, I was going to.

A few hours into my stay, Jon and I were trying to decide how to tell the doctors we weren't going to listen to their stern recommendations. I decided it was time to call my brother. I gathered my composure and picked up my phone.

"Shut up, I'm already on the road."

I don't allow myself to think about what was going through my husband's mind on the 40-min drive to the Emergency Room, and I don't want to know what that five-hour drive was like for my brother. Jon has since said that anytime he sees someone frantically overtaking people on the road, he imagines them worried and rushing to a loved one, so he just gets out of the way.

Jon never left my side for more than a few minutes throughout the entire ordeal. My mom and dad were on the other side of my hospital bed. And then my brother burst into the room. Things did not magically get better. We were still helpless and losing our child. But when I looked around and saw that my team was complete, I finally let out a breath.

Many times I have tried to explain how I feel about my brother. Maybe everyone thinks of their siblings this way, I don't know, but making sure he's ok has simply always been a life requirement. I remember tiptoeing into his room at 3 a.m. to see that he was still breathing when I was 10. He came to visit me in Champaign after he got his drivers license, and on the way home his car broke down on an unlit stretch of Interstate 57 at Sauk Trail; the sheriff lit some flares and just left him there. My then-boyfriend couldn't understand why I was pacing around in tears thinking about my brother, scared and alone, waiting for hours after the flares went out for my parents to get there. And I cried just as much as our mother did at his college graduation.

I feel like an overbearing just-as-bad-as-mom who lectures and worries and causes the biggest eyerolls imaginable. Most of the time, I probably am. However, my brother dropped everything, threw together a bag, jumped into his car and drove 282 miles just to be in the same room as me and all he said was, "How could I NOT be here? You are my sister."

People say that you don't know what it's truly like to care about another person's wellbeing until you have a child. Having had one--albeit very briefly--I agree. But I think I already had a pretty good idea.

Happy Birthday, brother.

9/9

Today is our beautiful nephew Declan's first birthday. Just 366 days ago we were hoping to get a glimpse of the guy. And for the last 365, people all over the country eagerly await each photo update and hope for the briefest chance to hold him. A curious little man, he's crawling at top speed, tasting everything that's cold and shiny, and climbing stairs. They're taking him to his first professional football game (San Diego Chargers) to celebrate. As far as I can tell, he's having a blast. I'm sure Uncle Jon approves.

Today is also the 92nd birthday of my Godmother's mom. Everyone knows her as Ma. She's sweet and vibrant, and she can hang with the multiple energetic great grandchildren she watches during the week. She made me her time-consuming family recipe, Methi Laddu (Fenugreek bars full of all kinds of nutritious stuff that's helpful for post-delivery moms) to help me get strong after Baby. She added extra sugar to cover up the bitter taste, and I ate every last one.

I realize I have been saying it lately--maybe I'm just getting old-- but it's amazing how quickly the time goes tripping along.

Here is Declan last February, finally big-ish enough for his raccoon costume.

Declan at 4 months.